|
Rank: Member
Groups: Registered
Joined: 5/15/2012 Posts: 18 Location: Essex
|
Hi, I took my first Cimzia injections on Wednesday 22 May 2013,the district nurse came to my place to teach me how to inject myself. After 8 hrs after I had my Cimzia injections I noticed a white lump at each site of my cimzia injections. It's not sore or hot at the sites of my injection. Has anyone here who's taking Cimzia has the same problem? I'm worried sick!
|
|
Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
|
In the absence of replies here, you should talk to the rheumy nurse / team to see if this is a known issue. But you have our sympathy. Let us know how you get on? Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
|
|
Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
|
I can only re-iterate what Paul has said,
I would phone your Rheumy Nurse, that would be my first point of call .. failing that I would go to see my GP, fortunately he is very clued up with all thing's RA.
do let us know how things are.
Suzanne
|
|
Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
|
Hi - I hope you're feeling better now. Let us know how the cimzia is working for you. Best wishes - Sylvia Be kinder than is necessary because everyone you meet is fighting some kind of battle
|
|
Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 242
|
Hi there
I am very interested to hear how you get on with cimzia as I am looking to switch to it very soon. I have been reading alot of the data and it seems quite common to get these white lumps after the injections. I believe Cimzia is very thick , so it will leave a bump when you inject. Just check with your rheumy team to confirm this but try not to get too worried. Have you been on anti-tnf before?
How did you get on with doing the injection? It's also quite a large amount to inject (200mg), isn't it? I believe you have to do a loading dose (2 injections) for the first few times? Have you had any other side effects other than the lumps?
I really wish you the very best of luck. Hope the cimzia works quickly for you. keep posting your progress.
Best wishes Rebecca
|
|
Rank: Newbie
Groups: Registered
Joined: 6/16/2010 Posts: 9
|
Hi. While I was on Cimzia I had the white areas at the injection site, didn't itch or hurt. My Rheum nurse said it had happened to some of her other patients.
|
|
Rank: Member
Groups: Registered
Joined: 5/15/2012 Posts: 18 Location: Essex
|
Hi, my story is quite long but will try to cut it short. I had my first and second booster injections of Cimizia which was fine apart from the white lump at the site of each injection. 2 weeks ago I took my 3rd injections, after few days I started having a rash on my cheeks and on the bridge of my nose(like a butterfly rash) and gradually it was getting worst everyday(my cheeks was feeling hot and itchy). I called the helpline of my rheumatology left a message and on Monday I went to see my GP which was absolutely useless. I end up buying some piriton and hydrocortisone cream to use, which helps a bit. I was due for my 4th Cimizia injection on Wednesday I did inject myself. Yesterday I saw my rheumatology nurse and doctor yesterday, the doctor requested some blood tests for immunology, ESR, RF. Hopefully this coming Monday I will get some feedback about my blood test from my nurse or doctor. I'm feeling so low and frustrated with my body. I had bad side effect with sulfalasine and planequil last year. Anyone here have the same side effect like me with cimizia?
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
|
Hi
Sorry to hear about your tough time with Cimzia. Unfortunately not everyone suits these drugs which I know is not very comforting but you must not beat yourself up about it.
I have no experience of Cimzia I am afraid. However, I had to give up on Sulfasalazine, Enbrel, Humira and Rituximab when I had really bad reactions to them. I am now on Simponi which I have absolutely no reaction to. It is just trial and error until you will hopefully find the one that works for you without reaction.
Don't despair they may have something they can do for you or an alternative which you can try.
Keep posting and let us know how you get on.
Jackie xx
|
|
Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 242
|
Hi there
I am going through a rough time with cimzia too so fully understand your worries. I haven't had a rash other than angry reddening around the site injection, that was after the second loading dose. It has gone down using lavender oil.
See what your blood tests indicate, you may find the side effects improve but I wouldn't inject any more until you see your blood results. Do you have any other symptoms? I have been ill in bed since my second dose last week, feels like the flu without an infection. By the way have you noticed any difference with joint pain and swelling?
Sending support Rebecca
|
|
Rank: Member
Groups: Registered
Joined: 5/15/2012 Posts: 18 Location: Essex
|
Hi Rebbeca,
I have seen some improvement with Cimizia but not that mush as I was expected. I was still getting the stiffness, swelling and pain (my wedding ring still doesn't fit on my finger). I'm still waiting for the result of my blood test. Like I said I haven't done my 4th injection last Wednesday so the pain is going up gradually. I hope they can start me on something very soon. I will let you the outcome of my blood test when I get it.
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
|
Not on cimzia no But on enbrel I got lumps down my sides and up under the arms I ended up getting a serious infection and having surgery to cut it out Nasty! But I was told from now on, any skin things get urgent dermatology appt They use many of the same drugs they use in ra for various conditions Will be able to treat appropriately I did actually return to enbrel for a full 2.5yrs after this Once the lumps began to return they gave me wash and a cream called fucibet (?sp?) They did go and not been back All the very best how to be a velvet bulldoser
|
|
|
|